Fundraising stories

In March 2025, Blanche ran the RomaOstia Half Marathon to raise vital funds for Immunodeficiency UK and LaSpes ONLUS, who support research into rare genetic diseases like Wiskott-Aldrich syndrome (WAS).   Blanche’s close friends lost their son to WAS, and she ran in his memory.  Twenty-five percent of the total funds raised went to Immunodeficiency

For Katy Rogers, running a marathon wasn’t just about personal achievement—it was about honouring her sister Emma and raising awareness for those living with immunodeficiency.  Emma was diagnosed with Common Variable Immune Deficiency (CVID) at 16 after years of recurrent infections and serious illness.   Katy has witnessed firsthand the impact of CVID on her

Eight-year-old Harry Chambers from Northern Ireland lives with XLA (X-linked agammaglobulinemia), a condition requiring regular infusion treatments every two weeks. Despite this challenge, Harry continues to thrive thanks to the dedicated support of the Immunology Department at Belfast's Royal Victoria Hospital, where he receives his essential care. Harry's mother, Lyndsey Chambers, Head of Music

Pictured: Jim Carvell (on the left) and Michael Ingleston When Jim Carvell began planning his 80th birthday celebration, he knew he wanted it to be more than just a personal milestone. As a long-time supporter of Immunodeficiency UK, Jim saw an opportunity to combine his special day with supporting a cause close

We’re proud to shine a spotlight on Sophie and Micky’s incredible fundraising journey.  Sophie and Micky took on an inspiring challenge, walking and hiking a staggering 870 miles of the Wales Coast Path—from rugged cliffs to stunning beaches, through bustling cities and quiet towns—all to raise awareness and vital funds for Immunodeficiency UK.  Jasper

The Immunodeficiency UK community is overjoyed to celebrate the incredible fundraising efforts of our dear supporter, Shauna. Driven by her love and concern for her nephew, Oliver, Shauna recently completed an exhilarating skydive that has raised an astounding £1,000 for our charity.  Oliver has been courageously navigating the challenges of a rare genetic condition

Running for a Cause Close to Home Katie has an immunodeficiency, so she knew she wanted to do something to support others facing similar challenges. She rallied her husband Andy and sister Jackie, and together they took on an incredible feat - the London Landmarks Half Marathon. Despite the gruelling training and 13.1-mile race

On a sunny day in May, the streets of Manchester came alive with the thunderous footsteps of determined runners, among them a dedicated team from Salford Immunology Service (Northern Care Alliance). Dubbed the "Immunology Runners," this group of healthcare professionals took on the challenging 10km Great Manchester Run with a noble purpose - to

During World Primary Immunodeficiency (PI) Week 2024, held from April 22nd to April 28th, Lead Nurse Mary Williamson and her dedicated team at Lloyds Pharmacy Clinical Homecare, pulled off an extraordinary fundraising feat. Their efforts raised over £630, including Gift Aid, helping Immunodeficiency UK support individuals affected by primary and secondary immunodeficiency. The team at Lloyds Pharmacy Clinical Homecare

Rachel is pictured above on the rightRachael Stephens, has raised £1,225 for Immunodeficiency UK after being diagnosed with CVID in early 2023 Rachael, who is based in Cornwall, set her sights on climbing three Scottish mountains, including Ben Nevis, the highest peak in the UK, as a fundraising challenge. A keen walker, Rachael works as