Patient stories

My name is Danielle and I am 30 years old. I was diagnosed with hypogammaglobulinemia in 2017. "After years of no explanation for my ill health, I was so happy to finally have an answer. A lot of the time when you are ill, you wonder if it is all

My name is Danny Boxer and I was diagnosed with common variable immune deficiency (CVID) in 1987. "If you are waiting for your vaccine, follow the advice given to stay safe and don't be too proud to ask for help. Take your vitamin D and get obsessive about hand washing!"

Hi, my name is Eirini. I am Hector’s mum. Hector is six years old and has XLA disease.  Hector had his first ear infection at the age of six months. We spent Christmas Day in the A&E department. "I wish for everyone, if they can, to vaccinate themselves and their

Hello, I’m 66 years old and was diagnosed with common variable immune deficiency (CVID) over three years ago after a long time of constantly being ill. This is my story of my journey to diagnosis and how I am now. "I broke down at the clinic. I was extremely upset at the

I knew I was a carrier for X-linked agammaglobulinemia (XLA) from the age of 15 - my dad who had XLA had died three years earlier at the age of 37 from serious infections and encephalitis. When my husband and I started to think about having children, we were terrified of history repeating itself,